Thursday, September 19, 2024

Family of 10-month-old baby with life-threatening disease seeks donor

First Published:

A parent’s job is never easy, especially when their child is sick. Myles Vokey is only 10 months old with a rare disease that threatens his life.

Myles was just 7 weeks old when he was diagnosed with a rare and chronic liver disease called Biliary Atresia. Due to his condition, he is currently living at Sick Kids in Toronto until he gets a new liver.

His mother Emily says it gets harder every day, “It’s a lot because we go from staying in the hospital all the time and we’re fortunate to stay at the Ronald McDonald House and get rest because that’s what they encourage us to do right now”.

Robin Vokey is Myles’ grandmother, she says it breaks her heart to see her daughter and grandson go through this.

Both remain hopeful through sharing his story a donor can be found to save Myles.

“If you can’t go through the evaluation process and donate a piece of your liver. It’s a big decision to make and it’s a personal one. Not everyone can do it and that’s ok,” says Myles’ mother.

Myles’ family has set up a website for anyone looking for more information to help.

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