A Niagara family is raising awareness of a rare and devastating syndrome impacting their baby girl

A Niagara region family is learning to care and advocate for their baby daughter- who has been diagnosed with a devastating and ultra-rare syndrome.

At birth, baby Georgie appeared to be a healthy girl – but as she grew, her parents noticed she wasn’t meeting important milestones like sitting, crawling, and walking. Kelly Botelho reports.

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